I just read this...wow. Primary progressive MS is tough. I have secondary progressive MS at this point, but had RRMS for years. I agree that taking care of yourself and rest are vital. I am thankful that I've found sturdy friends who didn't disappear, but I understand that this happens. Take care.
Welcome, Pamela! Fibro is something else, isn’t it? It’s not enough that the disease causes physical pain. The emotional pain (when “good friends” disappear), is an added bonus. 🙄
Welcome to my safe space of kindness and understanding. I’m glad you’re here. Truly. ❤️
Thanks for this, Kim. I am 67, I was diagnosed with fibromyalgia in 2021, although I had had Chronic Fatigue Syndrome since the mid 80's. All my friends fell away within a short time. No one understands, nor do they care to try. Blessings to you. Thanks for liking my comment elsewhere and leaving me the trail to find you.
As someone who has dealt with daily pain and fatigue since July, a diagnosis of fibromyalgia in the past month, and so much more I resonated with a lot of this. The only thing that has been constant for me has been my identity in Christ. It’s often the reason others feel baffled how I can be praising God while sobbing on bad days. But it’s like an unhidden secret. My identity doesn’t change no matter how disabled and depressed I get. That hope is secure.
Welcome to the fibro club, Chanel. It’s not a fun club but you’ll find we’re pretty darn supportive around here.
I also rely on my faith to get me through. It’s what sustains me and keeps me moving forward. May the Lord give us grace and wisdom when we call out to Him. Gentle hugs.
I just read this...wow. Primary progressive MS is tough. I have secondary progressive MS at this point, but had RRMS for years. I agree that taking care of yourself and rest are vital. I am thankful that I've found sturdy friends who didn't disappear, but I understand that this happens. Take care.
Welcome, Pamela! Fibro is something else, isn’t it? It’s not enough that the disease causes physical pain. The emotional pain (when “good friends” disappear), is an added bonus. 🙄
Welcome to my safe space of kindness and understanding. I’m glad you’re here. Truly. ❤️
Thanks for this, Kim. I am 67, I was diagnosed with fibromyalgia in 2021, although I had had Chronic Fatigue Syndrome since the mid 80's. All my friends fell away within a short time. No one understands, nor do they care to try. Blessings to you. Thanks for liking my comment elsewhere and leaving me the trail to find you.
As someone who has dealt with daily pain and fatigue since July, a diagnosis of fibromyalgia in the past month, and so much more I resonated with a lot of this. The only thing that has been constant for me has been my identity in Christ. It’s often the reason others feel baffled how I can be praising God while sobbing on bad days. But it’s like an unhidden secret. My identity doesn’t change no matter how disabled and depressed I get. That hope is secure.
Welcome to the fibro club, Chanel. It’s not a fun club but you’ll find we’re pretty darn supportive around here.
I also rely on my faith to get me through. It’s what sustains me and keeps me moving forward. May the Lord give us grace and wisdom when we call out to Him. Gentle hugs.
So glad to have your words ❤️
“Love yourself enough to know yourself”
Thank you for sharing this, Kim
YW, Matt. Thank you for loving yourself and doing the hard work. The world needs your voice.